The National Alliance for PANS/PANDAS Action (NAPPA) seeks to obtain increased federal funding for PANS and PANDAS research, care and treatment. Between 2014 and 2024, PANS and PANDAS researchers have received an average of only 1 million dollars annually from the federal government -- an amount woefully inadequate to achieve the much needed breakthroughs in care and treatment for these devastating conditions that cause unbelievable pain and suffering for children and families.
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Please join us! It is our sincere hope that you will join us in these efforts. Together, we can use our combined voices to secure increased federal funding for research and treatment of PANS and PANDAS. Many families and friends of loved ones grappling with PANS and PANDAS have been involved in assisting with outreach to lawmakers in Congress. Your voice matters - it is making a difference! We look forward to working together to move this initiative forward. Please contact us to be placed on our mailing list.
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NAPPA FOunding Members
Amanda Peel Crowley, MEd
NAPPA Executive Director
Mending Minds Foundation
Ramesh Allen, JD
Stanford PANS Advisory Council
Bibiana Castaneda, MD
Stanford PANS Advisory Council
Monika Gruter Cheney, JD
Stanford PANS Advisory Council
Sheilah Gauch, MEd, LICSW
MA Coalition for PANS/ PANDAS Legislation
The Alex Manfull Fund
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Alissa Johnson, MA
Johnson Policy Consulting
The Louisa Adelynn Johnson Fund for Complex Disease
Wendy Nawara, MSW, BCPA
Wendy Nawara Consulting PANS Health Advocacy
Blake Poggi, MA, CCC-SLP
Mending Minds Foundation
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