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The National Alliance for PANS/PANDAS Action (NAPPA) seeks to obtain increased federal funding for PANS and PANDAS research, care and treatment. Between 2014 and 2024, PANS and PANDAS researchers have received an average of only 1 million dollars annually from the federal government -- an amount woefully inadequate to achieve the much needed breakthroughs in care and treatment for these devastating conditions that cause unbelievable pain and suffering for children and families. 

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Please join us! It is our sincere hope that you will join us in these efforts. Together, we can use our combined voices to secure increased federal funding for research and treatment of PANS and PANDAS. Many families and friends of loved ones grappling with PANS and PANDAS have been involved in assisting with outreach to lawmakers in Congress. Your voice matters - it is making a difference! We look forward to working together to move this initiative forward. Please contact us to be placed on our mailing list.

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NAPPA FOunding Members

Amanda Peel Crowley, MEd

NAPPA Executive Director 

Mending Minds Foundation

 

Ramesh Allen, JD 

Stanford PANS Advisory Council 

 

Bibiana Castaneda, MD
Stanford PANS Advisory Council

 

Monika Gruter Cheney, JD
Stanford PANS Advisory Council

 

Sheilah Gauch, MEd, LICSW

MA Coalition for PANS/ PANDAS Legislation

The Alex Manfull Fund

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Alissa Johnson, MA

Johnson Policy Consulting

The Louisa Adelynn Johnson Fund for Complex Disease

 

Wendy Nawara, MSW, BCPA

Wendy Nawara Consulting PANS Health Advocacy

 

Blake Poggi, MA, CCC-SLP

Mending Minds Foundation

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